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ASK Blog

Stories of Making Life Better for Children with Cancer

I Met a Superhero

8/28/2017

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Behind the scenes with ASK kid Jonathan
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Written by Amy Godkin, Executive Director
Courage in Action

One very warm summer day in late June, I visited a photo shoot at the VMFA for ASK’s upcoming Kourageous Kids exhibit produced by Commonwealth Photography. Aimed at raising awareness about childhood cancer in our community and ASK’s programs, the exhibit coincides with September’s National Childhood Cancer Awareness Month.
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At the shoot, I had a chance to hang out with ASK kid Jonathan, one of our portrait stars, and his mom Keondra. Jonathan's signature look of a matching hat for his outfit speaks to his sense of style, which made it easy for James Clark, owner of Commonwealth Photography, to capture his big personality, just as he does for all of our kids.  

In between hearing James tell Jonathan, "You're looking handsome! These are going to turn out great!" and finding a shady spot to stand in with Keondra, I learned that Jonathan has braved not one but two bone marrow transplants since being diagnosed with Neuroblastoma. He has endured months of recovery, even having to learn to walk again. 

This was heart-crushing to hear as Jonathan loved to play soccer and was a goalie before his cancer diagnosis. He was also active in riding his dirt bike. Jonathan has kept a positive attitude though throughout his treatment and is looking forward to enjoying his favorite outdoor activities. 
Life with Cancer

During the photo shoot, Jonathan wasn't feeling well but Keondra shared that he had been looking forward to it so they made the long trip from home. Not once did he complain. Through a fever and feeling tired, he smiled and gave the camera his best. Immediately after taking a candid with James, Jonathan and his mom headed to the hospital where he was admitted through the ER.

I was left feeling humbled by his quiet courage and determination to be there. This is so true for many of kids and families. Life doesn't go back to "normal" once the battle has been won. There are late effects, physical and cognitive, that our kids continue to face.

Meeting Jonathan reminded me of how important this shoot is to our kids. It's a chance for them to be seen first as kids doing what they love, and not just the kid with cancer. I can't wait for Jonathan to see his portrait for the first time at our upcoming Kourageous Kids party and to share that moment with his family and friends. 


Go Gold for Jonathan
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James and Jonathan pause for a candid together. 
I invite you to come see Jonathan and all of our Kourageous Kids this September at the following portrait display locations:

Children’s Museum of Richmond: September 10th – 11th
1 James Center Lobby: September 11th – 22nd
Children’s Pavilion: September 22nd – October 6th
 
There will be others ways throughout September for you to show your support for children with cancer and to help to make their life better. Follow us on Facebook and here on the blog as we Go Gold for our ASK kids and families. 
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