Meet ASK Kid Nikolas
- hgardner88
- May 29
- 3 min read
Meet ASK Kid Nikolas!
He loves spending his free time outside with his older brothers on the family campground, playing Minecraft, and making friends everywhere he goes. As the family navigated the COVID-19 Pandemic with the rest of the world in 2020, they noticed that Nikolas was not acting like his usual self.
"He got COVID, and then he just never really got better. He started getting more and more tired, putting on some weight, losing his appetite, not eating, lots of headaches, nose bleeds, and we would take him to the doctor," ASK Kid Nikolas's dad, James, recalled. While medical professionals were still trying to figure out the COVID-19 virus, they wrote off Nikolas's symptoms as a continuation of COVID-19, suggesting more vitamin C, zinc, and lots of rest to recover.
Despite following doctors' orders and COVID protocols, Nikolas wasn't improving, and his decline became increasingly noticeable. ASK dad James recalls the day he had a gut feeling that his son was experiencing something more serious: "Nikolas was going to bike around the family campground as he normally would, but he just couldn't do it.
He would go outside, ride his bike for maybe 30 seconds, and then come in and say, 'Oh, Dad, I'm just so tired, I just can't do it.' And then the real turning point was he ate very little."
A few days later, Nikolas' symptoms became even more evident. "He was with his mom, and he ate very little, and then he laid down on the floor, and he just threw up and he wouldn't move. So his mom called me and said, 'I need to take him to the emergency room.'" James shared. Nikolas chimed in, saying, "It was one of my favorite meals, too!" further emphasizing the abnormality of his symptoms.
Nikolas's mom quickly rushed him to the emergency room only to be told the same answer—COVID-19. Nikolas' parents weren't satisfied with that answer. They knew this was different and decided to request blood work for Nikolas. What they found changed their family's life forever.
Nikolas was officially diagnosed with Philadelphia-Positive Acute Lymphoblastic Leukemia (Ph+ ALL) in 2022. "It was one of those; everybody got real quiet…they wanted to transport [Nikolas] to whichever children's oncologist would take him first. Fortunately, Roanoke answered the call first and was immediately transported to Carilion Children's Hospital.
ASK Dad James was a constant presence at every hospital visit, trying to make sense of their new reality. "The one thing that I didn't even consider or think about was school," he recalled. Similar to many parents navigating childhood cancer, he was focused on Nikolas' medical appointments, health, and treatments; it simply hadn't crossed his mind. That's where ASK came in. Amy Fender, the ASK Education Support Navigator, walked into the room all smiles and ready to help Nikolas get resources and activities to help him overcome any gaps he may have accumulated while out of school for treatment.
Amy is one of six Navigators stationed at each of Virginia's five pediatric cancer treatment centers, bridging the gap between hospital inpatient stays and patients' schools to help them stay on grade level and receive the accommodations they need to be successful.
"It was such a relief to have her walk in and say, 'I got this part. You take care of him. You keep him happy. The doctors are going to do the medicine. I'm going to do the school. You take care of Nikolas.' And that's what we did."
- James, ASK Kid Nikolas' Dad
At Carilion Children's Hematology/Oncology, the family found a supportive network of people who quickly connected with Nikolas. They patiently guided them through the complexities of his diagnosis, explaining that his specific case required a treatment approach more akin to Acute Myeloid Leukemia than the typical ALL protocol. This meant a more aggressive course of action. Though the standard treatment for PH-ALL lasted three years, Nikolas's intense regimen concluded in two. "It was very aggressive, but he was a trooper," James said proudly.
This spring will mark Nikolas's family's third year participating in the annual ASK 5K & Fun Walk, one of our signature events that raise funds and awareness for childhood cancer. James expressed, "We are very happy to continue to donate to that cause…I know there are so many people that have to make that choice. 'Do I go to treatment, or do I go to work? Do I buy gas, or do we buy medicine?'"
Just like his favorite Marvel superheroes, Nikolas faced his cancer journey with remarkable courage and an unwavering smile, forming many friendships. His resilience continues to inspire not only his family but everyone who meets him. He is regaining strength and returning to his regular life, one step at a time.
