ASK Blog
Stories of Making Life Better for Children with Cancer
 Seven-year-old Kennedy loves gymnastics and practices it at least an hour a day, so when she suddenly stopped wanting to go, her mom knew something was wrong. Athena, Kennedy's mom, thought maybe she was being bullied. However, it wasn't long after Kennedy had a series of fevers that they drove to their pediatrician's office and found the answer.
Once Kennedy's pediatrician ran her blood work, they saw the low blood counts and broke the news "likely leukemia.” Athena immediately rushed home, packed a bag and headed to VCU Health. Doctors confirmed the diagnosis later that night, and Kennedy was in surgery the following morning. On May 12, 2021, she had her port placed and began chemotherapy as part of her treatment plan that will span nearly two and a half years.
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 We could (and did!) put an album together of Tim Cosgrove grilling at ASK summer camp, but there's more to Tim than being a grillmaster. Tim is now President of the ASK Board of Directors and helping to lead the charge in raising the level of care for children with cancer. And, to think, it all started with one simple invitation.
In 2015, Tim was asked by a co-worker (who happens to be married to Miss Katie) if he would sponsor the ASK 5K & Fun Walk. Tim, then general manager with CMA's Colonial Honda, immediately agreed. “We have a very active volunteer committee at work, and once we started working with ASK, we were hooked,” explains Tim. Tim went on to join the ASK development committee in 2017 and he has served on the ASK Board of Directors since 2018. In between the years, Tim has given back in numerous ways. From rolling up his sleeves for event set-up to wrapping a car for his ASK walk team to closing the dealership so employees could participate in ASK events.  It's that time of the year again, and we're gearing up to make the holiday season a special one for our ASK kids and families! With shipping delays and shortages expected this holiday season, we could really use your helping hands to fill Santa's sleigh. Will you join us in helping to make the holiday season a joyous one for our ASK kids and siblings?
We're hosting our annual holiday party as a Tacky Lights Drive-Thru event on December 5th to keep our kids and families safe. We need our village to make the magic happen!  "I can remember the exact moment we learned of Javi's diagnosis. It was certainly a rough day. But no time was wasted and we immediately started receiving phone calls to schedule further tests, which started our journey at the Children's Hospital of Richmond at VCU. Within days, Javi had a port inserted and started chemotherapy. It was a whirlwind, but we had no idea of the tornado that was about to hit us," shares his mom, Amy. ASK Kourageous Kid Javi is a typical five-year-old who loves to play baseball and soccer and runs around in his firefighter and police uniform. He loves books and is now learning to read in kindergarten.
Today Javi is healthy, but less than two years ago, in early May 2019, he began having large clusters of swollen lymph nodes in his neck. His pediatrician knew something was wrong and conducted a series of blood tests, ultrasounds, X-rays, PET scans, and a biopsy of the most prominent cervical lymph node, Javi was diagnosed with Stage 3S, Epstein-Barr Virus Positive (EBV+) Hodgkin's Lymphoma.  When Kevin Williamson attended the ASK Above & Beyond Gala in March 2018, he had no idea how inspired he would be by the children he met that night. He had first learned of ASK when participating in M4K Richmond but the night of the gala is when his heart changed forever.
Kevin was so moved that he agreed to serve on the ASK Development Committee and be part of the charge helping to raise the level of care for children with cancer and their families.  Michael Pittman has a big heart for children so when a friend invited him and his wife, Luci, to the ASK Above & Beyond Gala in 2018, Michael was happy to attend and make a contribution. Michael and Luci's support didn't stop that night though. They later attended the ASK Fall Bash and then stepped as a gala sponsor through their company, Connected Solutions Group (CSG) and have brought CSG employees to the event to learn more about ASK's mission.
All of this has led to the CSG team making the new ASK Family Center a priority. "This new facility will impact kids with cancer right here in our community. I'm a native Richmonder and I love that I can help my neighbors and friends," shares Michael.  ASK is an organization that truly makes life better for kids with cancer. Just spend five minutes with ASK kid Campbell who is one of ASK's biggest fans and an ASK kid now in her teens. Campbell was diagnosed with Acute Lymphoblastic Leukemia with the positive Philadelphia chromosome, a rare leukemia for children, when she was six years old.
 "It's my job to make sure that all ASK kids know that they can be functional, contributing members of society regardless of their diagnosis or disability," lovingly states Alma Morgan, ASK's education coordinator and education team member at the Children's Hospital of Richmond. Alma's position is just one of the professional positions supported by ASK funding and a key member of the administrative team that keeps ASK kids on track academically, while in-patient or in clinic.
 Doug Keefer attended a small fundraiser with his son, Ben, while visiting from California. Ben, one of the founders of Mustaches 4 Kids - Richmond, wanted his dad to hear about one of M4K's primary partners, ASK Childhood Cancer Foundation. After five minutes of listening about the purpose, programs and services in which ASK provides to pediatric cancer children and their families, Doug was "all in for ASK." "I was so overwhelmed by the caring and targeted way ASK is able to touch families as they go through the unimaginable. I wanted to learn more and I knew I had to become part of their team," said Doug.  Just six months ago, Grady was a very different little boy, always complaining of leg and stomach aches and sleeping much of the day away.
Today, Grady is a typical four-year-old boy who loves long nature walks, summers at the pool, and lots and lots of running outside. His mom, Daniele is abundantly grateful for his energy and enthusiasm for life. "Looking back at his short life, I realize he's always been kind of sickly, with several ear and strep infections, and flu and stomach issues," says Daniele. When Grady and his family flew to Texas for Thanksgiving in 2019, his health took a turn for the worse and he was uncontrollably sick the entire flight back to Virginia. He never fully recovered from this episode and was eventually diagnosed in April 2020 with B-Cell Acute Lymphoblastic Leukemia, the most common type of pediatric leukemia. |
